Friday, February 13, 2009
Friday, December 12, 2008
Kindergarten holidy concert
Today was the Kindergarten Holiday Open House. Ethan did a great job. The kids sang several songs then the parents joined in for a couple of carols before we got some cookies and punch.
Wednesday, December 03, 2008
Thanksgiving
Basement update
Wet bar during. I have the sink installed and plumbing done, as well as a new outlet under the cabinet for the mini fridge, and under cabinet lights. Next stage, finish polyurethane on the doors and do a back splash.
Sunday, November 02, 2008
Tooth Time
Before.
It was held on by one tiny little part and he could wiggle it diagonally. A few screams and "It hurts," finally a sit on moms lap and Daddy got it out. Once he saw it he realized it hurt and cried some more.
After.
Later that day he told us it wasn't so bad. ;o) I wish I had that on tape to play back for him next time. And it won't be long. The other top front tooth is going to be ready to come out very soon.
Check out the paint!
Wednesday, October 29, 2008
Basement
We had to get creative on this wall. It was partially finished with drywall but what was already there hadn't been framed out enough for us to use traditional studs to frame it. So we got a 1/2 inch piece of plywood and made our own studs. The biggest problem was that the cement wall was so hard to drill into that we decided to just liquid nail the 'studs' on. Did you know that when you cut 1/2 inch ply it tends to warp a bit? After sitting there holding the wood against the wall so the liquid nails would dry for a while we finally rigged up a way to hold it until it was set.
Saturday, October 18, 2008
Riding bikes
Ethan was up on his bike for the first time since his surgery!!!! It was great to see him back on the bike.
Thursday, October 09, 2008
New Braces
Ethan got his new braces this week and we're working on breaking them in. He wore them for 3 hours yesterday and we can keep adding about an hour a day until he can wear them all day. We're still working on endurance and stairs are still very hard but he has improved greatly! It will be nice to be able to run again and get exercise.
As you can see, he was very proud that he could run again.
Tuesday, October 07, 2008
Playing in the dirt
Wednesday, September 17, 2008
Guess what??? No more cast!
First stop, the cast room to take the cast off. The cast guru did a great job explaining things to Ethan and he was fascinated with the tool used to cut off the cast as well as the pliers type things that he used to pry the cast apart.
This is the button on the bottom of his foot. I had no idea what to expect.
You can tell the button was pulled fairly tight to hold the tendon in place. We can't wait for our first bath in 6 1/2 weeks!!!!
Instead of another cast, the surgeon got him a walking cast instead. Ethan is pretty sore and so far today he has stood on that foot for about 5 seconds then he was done, saying that it hurt. It might be a day or two before he's ready to get back up on there. Hopefully we'll be able to get better practice and get back into the swing of walking again very soon.
We then went across town to have molds made for his new braces. We got to pick this time and Ethan chose camo straps with green foam. We should have them in about two weeks.
Saturday, September 13, 2008
Learning to walk
It has taken quite a bit longer than we expected for Ethan to be able to get up and walk on his cast. When we first started getting him up with the cast boot on, it seemed like he couldn't even remember how to walk. He would hold on with both hands and try to lean back against me if I was right behind him and really concentrate on making his feet move. At first it was one a step at a time, then two or three steps, then finally yesterday he was able to start taking several steps, even a few by himself. He is still very wobbly as you can tell, and we need to make sure someone is near to help catch him if he falls, but a lot of improvement. If you notice, he will make his hands into fists to help him keep his balance when walking. He would do this quite a bit before, but a lot more right now.
We go back on Wednesday to take this cast off and the button on the bottom of his foot. After that they will make a mold of his foot in order to make a new brace, then another cast until the brace comes in. At this point he thinks he wants a red cast. We'll see what they have.
Thursday, August 28, 2008
Last of the long cast
First Day of School

Friday, August 08, 2008
Hospital
Ethan is wearing the Wall-E hat that the anesthesiologist gave him while Daddy feeds him jello and he gets fitted for his wheelchair that he'll be using until the cast is off.
The playroom was right across from Ethan's room so it was easy to get over there to play.
We go back after 3 weeks and the surgeon plans to take the cast off under sedation and see how it's healing. Ethan's heel cord is tight, the surgeon didn't want to do anything with that yet, he wanted to see if keeping the leg casted in the bent position will help stretch the heel cord enough, if not, if not, he might go in at that time and lengthen the heel cord. Either way, they will put another cast back on, most likely another full leg cast for three more weeks. When that one comes off, they can do a cast of the left foot in order to make a mold and make a new brace for that leg, then he'll get a short cast for a couple of weeks until the new brace is ready. Yes, that adds up to about 8 weeks in a cast, and Ethan is already tired of it. He wants to get up and walk so badly.
Friday, August 01, 2008
Ethan's surgery
http://gait.aidi.udel.edu/procedures/splitposteriortendontransfer.pdf
There might be a little more that the surgeon will have to do once he gets in there, but more likely he will do this, then do more at a later date after we see how he responds. One of the issues is that because of the nerve damage from his spina bifida and his tethered spinal cord, some of the muscles are weaker, and if he does too much, those weak areas might not be able to hold up under increased pressure and he could start having issues in the opposite way. We are also watching his right foot closely because it is just barely starting to do some of the same things that the left has done.
Depending on how he's doing and handling the pain, we might be able to go home later that day. I think the hardest part will be dealing with being in a cast for 6 weeks, especially in three weeks when school starts.
Ethan is 6 years old

Ice cream is important, can't even let the spoon out of our mouth to wipe up a drop of ice cream.

Ethan had a Batman birthday. He picked a yellow cake with yellow icing because that is the color of Batman's utility belt.
Brandon's Birthday
Brandon wanted an Indiana Jone's Birthday, so his chocolate cake was topped with a scene from one of the movies.
It took a little bit to figure out how to make the stand that the idol was sitting on. Brandon didn't mind eating all the M&M's from the gumball machine until he got to a brown one that I could use to be the sack of sand he used for a weight.Birthdays
The boys got a Wii for their birthdays. Can you get a little idea of the excitement that Brandon has with the Lego Indiana Jones game?
Big brother is reading the back of the case of his game, guess I'd better do that too.







