Back in the beginning

Here is another clip from the video that I had forgotten about. This was taken in those first few days that we were home and just a couple of weeks before his detether surgery. I am amazed at how well he was walking back then.

Ethan, the lost videos

I remembered taking this video while we were in China, but with all the doctors and surgery when we came home I had forgotten about it. I looked tonight and finally found the tape! Now that we know about his narcolepsy and cataplexy we can look back and see that, along with the tethered spinal cord, was most of what we were seeing in China when the nannies and doctors were saying it was the hydrocephalus or other things. It has been almost 2 years since Ethan has been home and you can see how much he's grown and developed.

Check out that arm! We may have a pitcher on our hands.

Out of the mouths . . . part 2

When you can't remember the name of something you figure out a way to describe it.

Itchy stick = back scratcher

Out of the mouths . . .

Today Ethan's para shared a story about something that happened recently at school. Someone was talking with the kids about teeth braces and asked if anyone knew someone with braces. Ethan raised his hand up and said he had braces. When they said no, not hat kind of braces he was adamant that yes, he had braces, right there on his feet.

Can you tell he's a very black and white thinker? He knew that the braces on his feet were braces, why would you call anything else by that name.

Tooth Losing Machine

Before

After

It was ready to come out this morning but we didn't have enough time before school. I think he played with it all day at school and as soon as we got home it was just a tiny little tug and it was out.

Big Muddy

Brandon's cub scout den had a trip to a wildlife refuge by the Missouri river. We thought we would get rained out but it stopped long enough to go on our hike.

Frog they found as we hiked along what used to be a Missouri River Levee.

Turtle shells found near a scour hole where the levee used to be.

Looking at the scour made from the 1993 flood.