Monday, April 27, 2009
He has a pretty good understanding of how God can form a family I think.
I just ran across these videos that we had of Ethan at the orphanage just a couple of weeks before we brought him home. We had sent a disposable video camera in a care package and they gave it back to us when we got Ethan. Here are a few of the videos that they took.
At then end they are having him say Baba (dad) and Mama (mom)
Here you can see the area around the orphanage as well as Ethan running and playing with his nannies.
Here we go Loopy Loo!
Sunday, April 26, 2009
We start physical therapy on Monday morning and go back for a follow up with the neurosurgeon on Wednesday. I have feeling PT will be really hard for him right now, but it is definitely needed to help him get walking better and help strengthen his core muscles to help him sit up straighter. He had been leaning a lot to the side before surgery, and now after moving around all those muscles in his back, he's very weak around his stomach and back.
It seemed to take him quite a while to start moving again, but now that he has, he's been doing so much better each day.
Friday, April 24, 2009
I thought I had heard something coming from the other room. Guess who decided to practice walking on his own. Then he wanted me to take a picture(video) to show Daddy.
Here you go! It's so great to see him up and moving a bit. We start back to some PT on Monday to help get his strength back.
Thursday, April 23, 2009
Tuesday, April 21, 2009
He wore himself out pretty well though and is taking a nap right now. He deserves it, he worked hard this morning.
Monday, April 20, 2009
Up in the wheelchair, but he'd just been walking and was poohed out. Looks pretty pitiful doesn't he?
Saturday, April 18, 2009
Friday, April 17, 2009
Ethan is doing great. He started waking up during the night. Fine for him, yawn for mom. He's been drinking great and the IV fluids should be able to be gone later as long as he keeps drinking well this morning. He still hasn't eaten much, but maybe now that he's able to start sitting up a little more instead of flat on his back or side he might be more ready to eat something.
I'll give more updates as we go through today and have physical therapy and occupational therapy.
Thursday, April 16, 2009
Wednesday, April 15, 2009
Ethan had a good night. They did have to raise his pain meds a bit during the night because he was in pain. His blood pressure was a little elevated they think because of the pain. He has a slight temp this morning so he's also had some Tylenol. They are moving him to a room on the floor today and starting to ween down the sedation meds slowly. Hopefully VERY SLOWLY. That was one of our biggest problems last time was when they tried to ween him off to much too soon and he thrashed around and tried to rip out the IVs and to sit up. He has to stay laying flat for at least another day before they will let him start elevating at all. Last time, at University, they kept him in PICU the whole time they had to have him sedated at all. Here they can keep the sedation going in a regular room as well. The PICU was nice, but a regular room might be nice as well, we are in a corner room so two hallways and a lot more light in the room all night here in PICU.
We haven't seen his NS yet but one that worked with him in the OR. He said that all the tethering was old and it didn't look like there was any new tethering. He also said that they removed a dermoid about the size of a walnut as well so his cord is now totally free floating the way it's supposed to be.
Thank you again to Mary for coming and keep us company.
Thanks Dick & Cheryl for the cute puppy dog. We showed Ethan last night but I'm not sure if he'll remember it because of the sedation.
Tuesday, April 14, 2009
We feel very good about things. I'm waiting for them to call be back to recovery to see him. They'll keep him on a pump with narcotics and sedation through tonight and probably tomorrow as well before they start to ween him off of anything.
Thank you again for your continued prayers.
Thank you for all your continued prayers.
I had a great visit from my friend Mary and her kiddos today to help pass the time.
I did find out that there isn't WiFi in the ICU rooms so I might not get to update quite as often as I'd hoped, but I'll try to at least get an update out once a day.
Thanks for all your prayers.
Monday, April 13, 2009
Ethan continually asked when we could dye eggs. When it was time, he fell asleep before we could start. When he woke up, he still had plenty of time to dye his eggs.
The Easter bunny decided it would be easier, and probably cheaper to put quarters and dimes in the Easter eggs instead of candy. Better for all of us that way, I'm sure.
Thursday, April 09, 2009
Today he asked his Para to pull his tooth, which she obviously can't do. She wouldn't even touch it and he told her "But it's clean. I brushed my teeth this morning."
Guess I'll get to pull another tooth tonight.
Tuesday, April 07, 2009
We'll be at the hospital for around a week, with him in ICU for the first part, having to lay flat so that the dura around the spinal cord can heal properly. If you're in the St Louis area, we'd love a visit, if not you can send Ethan a card through the hospital's website http://www.stlouischildrens.org/content/SendaGiftorGreeting.htm and they will deliver it the next day to his room.
Ethan is actually dealing with having his 4th surgery since coming home very well. He was the most worried that he would have a button on the bottom of his foot like his orthopedic surgery. Once I assured him that this surgery he wouldn't have casts he was fine. I didn't tell him that sometime after he has recuperated from this surgery he will have another orthopedic surgery and will have casts on both legs. We'll save that information until that surgery is scheduled.
The hospital has WiFi so I should be able to keep everyone updated throughout our stay.
We would appreciate your prayers to guide the surgeons hands during surgery and that this will have a positive effect on Ethan's motor function.
Saturday, April 04, 2009
Thursday, April 02, 2009
As we get closer to Ethan's second Gotcha Day these videos seem even more special, seeing those first few days and weeks we were together. So many things have changed yet so many things have remained the same. Ethan still wants to follow GeGe around and do what he does.