Thursday

Thursday was a big day of doctors appointments. 9:00 am we started with the neurosurgeon. He is not as concerned about the hydrocephalus, but more with tethering of his spinal cord. He feels that the balance and walking issues are caused by tethering not hydrocephalus, partly because his arms do not seem to be effected. That does not really explain the sleepiness though. At 1:00pm we went to the ophthalmologist clinic at the hospital to dilate his eyes and look to see if there is any pressure on the back of his eyes. It took four sets of the eye drops by the resident to get his eyes dilated. Ethan didn’t like that very well, as you can probably imagine. They finally got them dilated and Ethan wouldn’t let ‘bad guy’ resident anywhere near his eyes after all the drops, so they called in a different doctor and he was able to get a great look inside and said that there was no pressure at the back of his eyes, and his opinion is that Ethan has enlarged ventricles but not necessarily hydrocephalus. He also said that Ethan really isn’t cross eyed like we thought, and that his medical information said. He said that there is just some excess skin around the bridge of his nose that makes it look like he’s cross eyed. At some point when we’re through with surgeries we’ll take him into the eye doctor for a full eye exam. We finally were done there around 5, nothing like a 4 hour doctors appointment, and all they had to do was dilate his eyes and look inside.

By the time we got home Jamey had heard back from the neurosurgeons office about the rest of the testing that needs done. On Tuesday afternoon Ethan will visit a pediatric urologist to do a bladder function test. Wednesday morning we go to the pre-op clinic in preparation for his sedated MRI on Thursday morning.

We have a big week of doctors ahead of us.

Thank you for all your continued prayers.