Day 2

Ethan got a new DS from Grandma and Papa to help pass the time while in the hospital. It was a great distraction while we were waiting for surgery. We were delayed from the original 8:50 until they took him back at 10:30 and started the surgery at 11:15. Then it was a great distraction for mom to play while we waited through the 6 hour surgery. ;o)

My friend Mary and her kids came by to hang out while we waited as well. It was so nice to see them and be entertained. I somehow missed getting pics of the rest of the family though.


Ethan had a good night. They did have to raise his pain meds a bit during the night because he was in pain. His blood pressure was a little elevated they think because of the pain. He has a slight temp this morning so he's also had some Tylenol. They are moving him to a room on the floor today and starting to ween down the sedation meds slowly. Hopefully VERY SLOWLY. That was one of our biggest problems last time was when they tried to ween him off to much too soon and he thrashed around and tried to rip out the IVs and to sit up. He has to stay laying flat for at least another day before they will let him start elevating at all. Last time, at University, they kept him in PICU the whole time they had to have him sedated at all. Here they can keep the sedation going in a regular room as well. The PICU was nice, but a regular room might be nice as well, we are in a corner room so two hallways and a lot more light in the room all night here in PICU.

We haven't seen his NS yet but one that worked with him in the OR. He said that all the tethering was old and it didn't look like there was any new tethering. He also said that they removed a dermoid about the size of a walnut as well so his cord is now totally free floating the way it's supposed to be.

Thank you again to Mary for coming and keep us company.
Thanks Dick & Cheryl for the cute puppy dog. We showed Ethan last night but I'm not sure if he'll remember it because of the sedation.